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Legal grey zone lets health body strip vital funding from disabled children

Dominic is 11 and now in his final year at a mainstream primary school. He is very happy there and despite very complex medical issues and relying on a powered wheelchair to get around, he is thriving. But this is because he has 1 to 1 support for his medical and educational needs.  This support has always been funded jointly by health and education.

At the end of the summer term, I was given the shocking news that our local Clinical Commissioning Group, Herts Valley CCG, had taken the decision to stop funding children with medical conditions in school. This decision was taken without consultation and delivered right before the summer holidays leaving parents like myself facing a long summer of no answers and no solutions being found. No one seems to think it’s their responsibility to meet the needs of these children.

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