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Parents Perspectives on Interventions for Children with Autistic Spectrum Disorder

Participant Information Form for Nottingham Trent University (NTU) Postgraduate Project

 

 

Project title: Parents’ Perspectives on Interventions for Children with Autism Spectrum Disorder

 

Thank you for agreeing to consider participating in this research project. Before deciding whether to grant me an interview, I feel it is important that you understand the reason why the research is being conducted, and what your participation will involve. I would be grateful if you would take the time to read the following information carefully and discuss with your colleagues or other people if you wish. Please do not hesitate to contact me if any of the information is unclear or you wish to discuss your participation in this project.

 

What is the purpose of the study?

This study is primarily concerned with exploring your feelings and experiences on interventions experienced by your child. I will be conducting semi-structured interviews with parents of children with Autism Spectrum Disorder. The study has been designed in order to gain an understanding of the different types of interventions that are put in place to assist children with Autism Spectrum Disorder and whether you think these interventions are working for your child.

 

Who is running the study?

The study is being conducted by me for my postgraduate project. My project supervisor is Associate Professor Andy Grayson. Please see the Contact details below.

 

Why have I been chosen to take part?

You have been selected for interviewing as I believe the perspective from the parent is a well valued one and I also think you are the best person to assess whether an intervention appears to be working for your child. In addition your input would be very helpful in contributing to the literature concerning Interventions and Autism Spectrum Disorder.

 

Do I have to take part?

No, your participation in this research is entirely voluntary. You have the right to withdraw from the study at any time before the interview, during the interview or after the interview. If you choose to withdraw from the study after the interview has taken place this must be done before the deadline date of June 1, 2018.

 

If you wish to withdraw you should contact me or Associate Professor Andy Grayson asking for your data to be withdrawn from the study before June 1, 2018.

 

What do I need to do?

I would like you to take part in an interview that should last for approximately 30 minutes, at a location that is convenient for you. Interviews will take place throughout the period of May 1, 2018 to May 13, 2018 and I will contact you by email to arrange a date and time that is convenient for you. The interview will be carried out by me and will follow a semi-structured format. As part of the informed consent form I would like your permission to record the interview with a digital voice recorder to ensure the data you provide is accurately documented.

What questions will be asked in the interview?

A full copy of the topics that you will be asked to talk about in the interview will be provided in advance by email and you will have the chance to read through them. Any topic that you would not feel comfortable to expand on will be omitted from the interview. If you are unsure about any of the topics, please contact me to discuss them further before the interview.

 

In addition to this, if you feel uncomfortable whilst in the interview you may refuse to answer, or give no comment to any of the topics, and I will continue on to the following topic.

 

 

What will happen to the information I provide in my interview?

The recording of your interview will be transcribed and analysed. This information will then be incorporated into the findings and conclusions of the research. Anonymised results may also be published in academic work outside of my project report. All transcripts will be kept on a private laptop, in password protected files. At the end of the study and after my graduation from NTU non-anonymised data will be destroyed in a secure manner but anonymised data may possibly be stored in case of likely publication.

 

 

 

How will the research team deal with confidentiality and protect my anonymity?

All transcripts will be fully anonymised and will be kept in a secure location at all times. Only my research supervisor, key members of the psychology assessment team (if necessary) and I will have access to these documents and recordings of interviews. Electronic copies of data will be stored on a private computer in encrypted/password protected files in line with the British Psychological Society’s code of ethics.

You will not be named or otherwise identified in any publication arising from this research. However, due to the method of data analysis, direct quotes will be taken from the interviews and used in my project report. Whilst these quotes will be anonymised, I cannot guarantee complete confidentiality.

 

What are the possible risks/disadvantages of taking part?

The main cost to you will be the time taken with the interview. The risks to you may include providing information that you may not feel comfortable with. However, as outlined above, any information you do provide will be kept anonymous and secure. In addition, you can choose not to talk about any of the topics or withdraw your data at any time until the final date specified for withdrawal of data.

 

What are the possible benefits/advantages?

To positively contribute in an area of research that is very important.  

 

What will happen to the results of the research?

I will write up the results of the research for my postgraduate project. The results of the study can be made available to you as a report, upon request, when the research is completed.

 

How can I find out more about this project and its results?

For more information about the project please do not hesitate to contact me or my research supervisor. I will send you a full copy of the interview topics before the interview and an electronic copy of the report, upon request, once the research is completed.

 

Has the study been reviewed by anyone?

The research has been subject to ethical approval by the University’s School of Social Sciences Research Ethics Committee. It has been designed with reference to the British Psychological Society’s code of ethics.

 

Who is responsible for the study?

I will be responsible for the conduct of this research.

 

Contacts and further information

Please feel free to contact me or my research supervisor:

 

Student Researcher: Renae Raymond

Email Address: renae.raymond2017@myntu.ac.uk

Course: MSc. Applied Child Psychology

 

Research Supervisor: Associate Professor Andy Grayson

Phone Number: +44 (0)115 848 5601

Email Address: andy.grayson@ntu.ac.uk

School of Social Sciences

Nottingham Trent University

50 Shakespeare Street

Nottingham

NG1 4FQ

 

 

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